As I have gone through this journey with ALS, what I have learned is that the majority of people in our lives want to help us, but they don't know what to do and feel helpless themselves. People will often ask me, "What can I do?" and I really struggle with what to tell them. … Continue reading Receiving and Giving Support
First of all, I am so grateful for everyone who sent me good thoughts, love and prayers for this past weekend. Even though I was by myself, I was not alone. As I sat in my temporary house nestled in the woods, I played music I loved, meditated, did some yoga, walked in the woods, … Continue reading HOPE
This four letter word is one of the hardest words to say, but today I'm saying it. In January it will be three years that my husband was diagnosed with ALS. Since that time I have been running 500 miles a minute and living in survival mode to make it from crisis to crisis. The … Continue reading Help!
I can't believe that it was the end of July when I last blogged. I'm happy to say that we are in a better spot than when I last wrote. We were able to get Jim on some additional medication so his aspiration pneumonia cleared up. He also changed the way he started eating which … Continue reading Got Gratitude?
We've been dealing with a chronic cough and fever with ALS over this last month and it's wearing on me. My husband is on hospice, which has been great in so many ways. They have provided regular care and are available for us 24 hours so they have already seen us through some tough situations … Continue reading
"Come on Spidermen!" I yell as a wave the blue-jerseyed three and four year-olds toward me. "Who's going to kick the ball this time?" I ask looking expectantly at my tiny players. On this sunny June day in Michigan I find myself in an unusual role. I am the soccer coach for my son's team. … Continue reading Accidentally Caught by a Soccer Net
I am a woman without a home. wandering the streets, shouldering all that my life has become. I hide underneath the street lamp. In the light, yet invisible, to sing my song and give voice to all that is lost. all that I cannot return to. My home is a torture chamber where death awaits. … Continue reading I am a Woman