It's been said that you don't know who your true friends are until you fall on tough times. This has been my life for the last three and a half years and I feel like the luckiest person in the world, because my family and friends have shown up for me in ways I could … Continue reading So that happened…
Yesterday I had the brilliant idea to take advantage of the free admission to our local metroparks. The play areas are closed, but I thought my son and I could hike the trails and go exploring. It's a large park so I knew we could maintain "social distancing" and get some fresh air. This is … Continue reading Day Four of Captivity
This morning as I was leisurely lying in bed and looking at my phone, after waking up from a nightmare at 5 a.m. where I was on The People's Court sporting a blonde mullet, I read a blog post from Menopausal Mommy. Her message to the world was "Love like your life depends on it." … Continue reading Day Two of Captivity
When I heard that Michigan's Governor was about to issue a mandatory shelter-in-place for the state, my first reaction was to panic. I had already planned to go to the grocery store that morning but now it felt urgent. I literally dropped everything, threw clothes on and dressed my five year old son. As we … Continue reading Day One of Captivity
As I have gone through this journey with ALS, what I have learned is that the majority of people in our lives want to help us, but they don't know what to do and feel helpless themselves. People will often ask me, "What can I do?" and I really struggle with what to tell them. … Continue reading Receiving and Giving Support
First of all, I am so grateful for everyone who sent me good thoughts, love and prayers for this past weekend. Even though I was by myself, I was not alone. As I sat in my temporary house nestled in the woods, I played music I loved, meditated, did some yoga, walked in the woods, … Continue reading HOPE
This four letter word is one of the hardest words to say, but today I'm saying it. In January it will be three years that my husband was diagnosed with ALS. Since that time I have been running 500 miles a minute and living in survival mode to make it from crisis to crisis. The … Continue reading Help!
I can't believe that it was the end of July when I last blogged. I'm happy to say that we are in a better spot than when I last wrote. We were able to get Jim on some additional medication so his aspiration pneumonia cleared up. He also changed the way he started eating which … Continue reading Got Gratitude?
We've been dealing with a chronic cough and fever with ALS over this last month and it's wearing on me. My husband is on hospice, which has been great in so many ways. They have provided regular care and are available for us 24 hours so they have already seen us through some tough situations … Continue reading
"Come on Spidermen!" I yell as a wave the blue-jerseyed three and four year-olds toward me. "Who's going to kick the ball this time?" I ask looking expectantly at my tiny players. On this sunny June day in Michigan I find myself in an unusual role. I am the soccer coach for my son's team. … Continue reading Accidentally Caught by a Soccer Net