We've been dealing with a chronic cough and fever with ALS over this last month and it's wearing on me. My husband is on hospice, which has been great in so many ways. They have provided regular care and are available for us 24 hours so they have already seen us through some tough situations … Continue reading →

"Come on Spidermen!" I yell as a wave the blue-jerseyed three and four year-olds toward me. "Who's going to kick the ball this time?" I ask looking expectantly at my tiny players. On this sunny June day in Michigan I find myself in an unusual role. I am the soccer coach for my son's team. … Continue reading Accidentally Caught by a Soccer Net →

I am a woman without a home. wandering the streets, shouldering all that my life has become. I hide underneath the street lamp. In the light, yet invisible, to sing my song and give voice to all that is lost. all that I cannot return to. My home is a torture chamber where death awaits. … Continue reading I am a Woman →

I remember the teacup ride at Disney World so vividly. I sat with my sisters in this over-sized porcelain cup eagerly waiting for the ride to begin. As the platform spun around we were thrown together to one side of the cup on our perilous journey. And, as if that wasn't enough, you could spin … Continue reading Jane, get me off this crazy thing! →

As I write this it's been two years, one month, twenty-one days, seven hours and nine minutes since ALS hijacked our lives. It wasn't so bad at first. Jim’s arm and voice were weaker than normal, but we were able to live in the comfort of denial for a few months. Jim returned to his … Continue reading Hijacked by ALS →

The Middle is Messy, but it's also where the Magic happens.  - Brene' Brown The quote from Brene Brown is about the idea of the formula for the Hero story. Think of every Disney movie you've ever seen. The Hero grows up obscure or troubled, the hero goes on an adventure and has some struggles, … Continue reading ALS Sucks →

I hate returning cans to the store. I think Michigan is the only state that makes people go through this crazy ritual. Michigan has this law that requires a ten cent deposit on all cans and bottles of carbonated beverages. This was a smart idea in 1980 when there was zero to no recycling. Now … Continue reading Life Lessons at the Recycling Center →