"Come on Spidermen!" I yell as a wave the blue-jerseyed three and four year-olds toward me. "Who's going to kick the ball this time?" I ask looking expectantly at my tiny players. On this sunny June day in Michigan I find myself in an unusual role. I am the soccer coach for my son's team. … Continue reading Accidentally Caught by a Soccer Net →

I am a woman without a home. wandering the streets, shouldering all that my life has become. I hide underneath the street lamp. In the light, yet invisible, to sing my song and give voice to all that is lost. all that I cannot return to. My home is a torture chamber where death awaits. … Continue reading I am a Woman →

I remember the teacup ride at Disney World so vividly. I sat with my sisters in this over-sized porcelain cup eagerly waiting for the ride to begin. As the platform spun around we were thrown together to one side of the cup on our perilous journey. And, as if that wasn't enough, you could spin … Continue reading Jane, get me off this crazy thing! →

As I write this it's been two years, one month, twenty-one days, seven hours and nine minutes since ALS hijacked our lives. It wasn't so bad at first. Jim’s arm and voice were weaker than normal, but we were able to live in the comfort of denial for a few months. Jim returned to his … Continue reading Hijacked by ALS →

The Middle is Messy, but it's also where the Magic happens.  - Brene' Brown The quote from Brene Brown is about the idea of the formula for the Hero story. Think of every Disney movie you've ever seen. The Hero grows up obscure or troubled, the hero goes on an adventure and has some struggles, … Continue reading ALS Sucks →

I hate returning cans to the store. I think Michigan is the only state that makes people go through this crazy ritual. Michigan has this law that requires a ten cent deposit on all cans and bottles of carbonated beverages. This was a smart idea in 1980 when there was zero to no recycling. Now … Continue reading Life Lessons at the Recycling Center →

The other day my three-year-old son and are were headed to an aquarium to meet some friends and I had to stop for gas. It was a warm summer day so I rolled down the back windows of our mini van to give him some air. I was making faces at him to entertain him … Continue reading In Living Color →

My husband recently had to have a feeding tube placed because of his continued decline with ALS. He is still able to eat, but it is difficult for him, so we viewed this as a simple procedure to help supplement his nutrition intake and give him more energy.  What we didn't expect is that this … Continue reading Looking for the Light →

So three months later... here I am writing again. As I said, my life is crazy! I realize that I have become a human doing rather than a human being in order to survive my life. Caring for my husband who can no longer walk and who struggles every day to feed himself, plus my … Continue reading I came back… →

I started this blog as an effort to write more and to tell my story, but I haven't been very faithful in this effort. This due to two things. One, my life is crazy. My husband has ALS, I have a three year old son and I work full time. My life is crazy. Having … Continue reading Every story deserves a voice →